Thursday, September 1, 2016

The Beginning of the Twilight

I sat down in the patient chair for the second time in two weeks, legs crossed, nervously kicking my leg rhythmically against the side of his medical desk, pondering which version of myself I was about to present to the man about to walk into the room. "Cerebral and charming," I think to myself. "No emotion. Not one tear. Be funny."  Underneath the drill sargeantesque directives I am mentally giving myself, there is a layer of simultaneous disgust at this planned manipulation. 

It's a natural part of my job as a therapist to read, assess, and connect with people quickly. It's not a skill I intentionally use for personal gain. Except for, well, right now. This time I am going for broke..."I am going to endear myself to you immediately, and stand out to you among the many people who come through your door. You will help me as much as you can."

In walks my neurologist. I smile broadly at him and say, "I missed you too much to wait another month to see you!" He cracks a grin at my joke. Underneath his expression, I see relief. Relief that I am sitting in front of him composed and rational. Relief that he will not have to calm down a hysterical woman. I inquire about his recent adventure, recalling all the details he had shared during our prior appointment, about his cats and their latest antics, about his work load and self care. He's busy telling me several stories-- as I watch him type in various passwords and wait for the screens to load the images we are both there to see. I put on my best studious, scientific, "let's get to the data," face. 

Then, suddenly, there it is.

An image of my brain. 

Then, several. 

I watch his face as he looks over each of the four images. For some reason, the squares remind me of the opening title sequence of 'The Brady Bunch.' I begin to hum the tune to myself while intently observing his microexpressions...the twitches, the brow furrow. I say out loud what I already know, "The preliminary diagnosis from the radiologist is definitely accurate, isn't it?"  

He nods. "Yes."  

"Show it to me."  

He takes a pen and shows me the tumor on each of the slides. He tells me what the parts of the middle of my brain ought to look like and what they actually do look like."  I manage to be mildly offended when he tells me my "pons is flat." Now I am watching myself in a surreal moment. He keeps talking, but it's hazy and I feel far far away.

" in a million...only seen one in my career..."  

"Go big or go home, right?"  I laugh. Maybe the fakest laugh I've ever laughed.

"Walk me through my death," I say curtly and matter of factly. Far, far away now. "Explain to me what will happen when it grows." He begins to tell me.  Hazy, hazy...clouds of consciousness.

I watch him officially pull up my diagnosis and enter the ICD 10 code into the computer system, "Malignant neoplasm of bones of skull and face C41.0 Chordoma."

"You just made it real," I say softly. 

 "Yes," he replies.

Then he moves on to discuss surgery, best chance to prolong my life for a couple chemotherapy won't do any good, how radiation would work on some of these types of tumors, but probably not on will destroy the surrounding brain tissue...your tumor is on the basilar artery...

I start to lose my stamina at keeping up my emotionless face. He moves on to list several neurosurgeons, and starts to discuss their personality attributes and how long he has known each of them.  I cut him off and reach for his hand, making sure he is looking at me, seeing me, "if this were you, who would you pick?"  He gives me the answer...but then goes on to tell me the surgeon will likely refer me out of state.

My last bit of gusto, like a marathoner at mile 26.1...turning on the charm as my soul collapses beneath his tower of words, "Do you think you could call him directly...and tell him about this one in a million cool tumor, and add that the patient isn't a basket case?"  He smiles at me and says, "I'll go call him right now."

Finish line. I can fall down now.

He walks out of the room and in a rather touching unexpected gentile gesture, walks over to pull the chair out for me as I sit down to talk to his assistant.  

My spaghetti legs ferry me down the stretch of muddy hallway carpet toward the elevator..."Thy will be done, Lord. Thy will be done."


  1. Carrying you in my heart and prayers. I'm here for you and your family.

    1. Love you, Hanna! Thank you so very much.

  2. I am so sorry. God has this and he has you. Keep your faith and hope and fight, fight, fight. May he be glorified in your battle. I pray for a miracle of course and for freedom from pain, fear, and discomfort. I pray you and your family will have peace.

  3. I sat and heard the words that I had cancer once, and I think it hits a certain way, no matter what. They're all different of course, and what I went through was minor compared to the experience of almost everyone else. But I have some slight inkling what you're describing.
    There's only one way to go, and that's forward.
    Keep moving!

    1. So true!I'm sure you have an inkling... Indeed, chin up! :-)

  4. Lean in to The Lord, cling to Him. His will, His way. And keep that beautiful sense of humor if you can. You'll be in my daily prayers. xox DebHag

    1. Oh thanks! That humor will be a staple for sure. :-)

  5. Wow! You are such an elegant writer! I know words can be of little comfort. Take your journey one day at a time. Every day is a gift (I am glad you can find the humor in days that do not go as planned). You never know what the future holds! I pray that you get the best medical care available and that you fight this battle and come out victorious. God Bless. I will be praying for you.

    1. Oh, thank you! Your prayers matter and are a balm to my very grateful heart!

  6. GOD LOVE YOU, dear, dear Anastasia!! Des O'Meara just told me about this, hon, and gave me your blog info. I'm stunned too.....oh, hon, how we will pray, pray, PRAY for you!! God love you! I will be waiching for updates too....but presently, I'm going to post this in our chapel so add another 130 Sisters to praying for our Anastasia! Greetings to your dear, dear family -- my love and prayers always!! Sister Joseph Andrew, OP

    1. Oh, dear Sr. Joseph you melt my heart with love. An ocean of gratitude to all the beautiful OP Sisters for their gift of prayer.